CancerCancer.org - The Social Support Network for People Living with Cancer

Privacy Policy

Effective October 26, 2007

CancerCancer.org realizes that our website, CancerCancer.org (the “Site”), can only work if we build trust with our patient communities. This policy outlines the type of information CancerCancer.org collects from our members and how it is shared with other parties. We reserve the right to modify this policy at any time, and without prior notice, by posting amended terms on this website. We encourage you to review this policy periodically for any updates.

We recognize that privacy is important. This document outlines the types of personal information we receive and collect when you the site's services, as well as some of the steps we take to safeguard information. We hope this will help you make an informed decision about sharing personal information with us.

Scope Personal information and other data we collect

• We collect personal information when you Sign Up for the service or otherwise voluntarily provide such information. We may combine personal information collected from you with information from other services or third parties to provide a better user experience, including customizing content for you.
• We use cookies and other technologies to enhance your online experience and to learn about how you use services in order to improve the quality of our services.
• Our servers automatically record information when you visit our website or use some of our products, including the URL, IP address, browser type and language, and the date and time of your request.

Uses

• We may use personal information to provide the services you've requested, including services that display customized content and advertising.
• We may also use personal information for auditing, research and analysis to operate and improve WeAre. technologies and services.
• We may share aggregated non-personal information with third parties outside of our group.
• When we use third parties to assist us in processing your personal information, we require that they comply with our Privacy Policy and any other appropriate confidentiality and security measures.
• We may also share information with third parties in limited circumstances, including when complying with legal process, preventing fraud or imminent harm, and ensuring the security of our network and services.
• We proces personal information on our servers in the United States of America and in other countries. In some cases, we process personal information on a server outside your own country.

Your choices

• We offer you choices when we ask for personal information, whenever reasonably possible. You can find more information about your choices in the privacy notices or FAQs for specific services.
• You may decline to provide personal information to us and/or refuse cookies in your browser, although some of our features or services may not function properly as a result.
• We make good faith efforts to provide you access to your personal information upon request and to let you correct such data if it is inaccurate and delete it, when reasonably possible.

More Details on WHAT KIND OF DATA WE COLLECT AND WHY

The type of data members may add to their profiles ("Profile Data") may include:

• Biographical information, including photo, bio, gender, age, location (city, state & country), and general notes
• Condition/disease information, including diagnosis date, first symptom information, and family history
• Treatment regimens, including treatment start dates, stop dates, and dosages
• Symptoms experienced, including severity and duration
• Primary and secondary outcome scores (e.g. weight) over time

Members may voluntarily enter information that identifies them ("Personally Identifiable Information") into their Profile Data or elsewhere on the Site. You may enter as much or as little of such information as you like. In the course of signing up to use the Site, CancerCancer.org may also ask you to provide certain information about yourself not in your Profile Data, such as your name, address, email, and birth date.

We may also periodically ask you to complete short surveys. You are free to respond or not. Your participation in these surveys is not required, and your refusal to do so will not impact your experience on the site. To create the best possible tools, research, and functionality for patients, we may also review your Personally Identifiable Information internally as needed.

Cookies are required to use the CancerCancer.org service. A cookie is a small data file, which often includes an anonymous unique identifier that is sent to your browser from a web site's computers and stored on your computer's hard drive. CancerCancer.org uses two types of cookies: Session Cookies, and Persistent Cookies. Session Cookies are temporary cookies that remain in the cookie file of your browser until you leave the Website. Session cookies do no store any personally identifying information, only a unique visitor ID number that we can use to customize the CancerCancer.org functionality for you. Persistent Cookies remain in the cookie file of your browser for much longer, even after you leave the CancerCancer.org website. Persistent cookies do no store any personally identifying information, only preferences that should persist from visit to visit, like "Remember Me".

HOW YOUR PERSONALLY IDENTIFIABLE DATA IS USED

So others can learn from your experience, your Profile Data will be aggregated and made available to other members. For example, we may report the number of patients trying a particular treatment or the number of patients experiencing a particular symptom. Additionally, other members will be able to view your Profile Data.

In addition to serving the individual needs of our members, CancerCancer.org sponsors on-going research studies. By filling out your Profile Data you are adding your health information to our database which may be used in research. For example, we may look at scientific questions such as, "Do certain treatments work better for some types of people versus others?" At CancerCancer.org and in conjunction with external researchers, we’re interested in better understanding the experience of living with chronic conditions and improving treatment options and health outcomes for everyone.

CancerCancer.org will never rent, sell or share information that personally identifies you for marketing purposes. We do, however, provide Personally Identifiable Information and non-Personally-Identifiable Information to approved vendors for CancerCancer.org email communications and other CancerCancer.org internal programs.

In the future, we may provide an opt-in service to allow our partners (including but not limited to pharmaceutical companies, medical devices companies, non-profits, and research institutions) to directly and anonymously communicate with you through our system. Furthermore, we may provide our partners with anonymized data (which may or may not be aggregated) for research and commercial purposes.

PRIVACY SETTINGS

CancerCancer.org offers two privacy levels you may choose for your participation:

• Visible: CancerCancer.org registered members can see my Profile Data and user name, and can contact me through CancerCancer.org.
• Public: Non-CancerCancer.org members will be able to view my Profile Data and CancerCancer.org registered members can contact me through CancerCancer.org.

You may change your privacy level at any time, however, public profiles may be indexed by Internet search engines (e.g. Google). Regardless of which level you choose, Personally Identifiable Information not contained in your Profile Data such as full name & birthday will not be revealed to others without your consent.

Because the value of CancerCancer.org is in sharing your experiences to help others, we hope that you feel comfortable enough to make your profile as visible as possible.

OTHER SECURITY ISSUES

CancerCancer.org cannot guarantee the identity of any other members with whom you may interact in the course of using the Site or who may have access (based on the privacy level you have selected) to information you have posted in the Member Area. Additionally, we cannot guarantee the authenticity of any data that members may provide about themselves.

Finally, you should know that CancerCancer.org takes commercially reasonable technical precautions to help keep your data secure.

RISKS AND BENEFITS

While our goal is to help patients improve health outcomes, there are no certain benefits to using this website. However, keeping track of personal well-being, treatments and symptoms has been shown to be helpful in improving overall health.

There are also no known risks to using this website, but there is a possibility that users may feel uncomfortable sharing information online. You are free to stop using this service at any time. You are also free to skip any questions or data fields that make you feel uncomfortable.

QUESTIONS ABOUT THE PRIVACY POLICY

For any questions or comments, or to report violations of this agreement, let us know, or contact us at:

Aedeas Group, LLC
Attn: User Agreement Issues
353 Kearny St. Suite 41
San Francisco, CA 94108

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