Young Adults (18-40)
14 Members
Created by Jen

Young Adults (18-40)

Young adults are often lost in the cancer story.  Doctors focus on children or the middle-aged but attention to young adults 18-40 is definitely lagging.  There are few resources and few studies.  Many of us are getting treatments not designed for people our age, and no one knows the repercussions.

  • 1 in 10 cancer survivors is under 40.
  • There are over 10,000,000 survivors living in the US.
  • That's over 1,000,000 young adult survivors.

This is a place to find resources (post anything you've come across!) and meet up with others walking in your shoes.

Please join us if you're a supporter as well!

Latest Photos

No photos yet.

Comments

Sign In to leave a comment.

Results 1 - 3

  • Sue

    Adolescent and Young Adult Cancer Bill of Rights

    We are neither pediatrics nor geriatrics,
    we have unique needs- medically, socially, and economically.

    However, the rights and dignity of adolescent and young adults are
    equal and vital to all individuals.

    We deserve to have our beliefs, privacy,
    and personal values respected.

    Access to care is a right,
    not a privilege.

    Our rights, as we perceive them to be and intend to preserve them, are:

    1. 1. The right to be taken seriously when seeking medical attention to avoid late diagnosis or misdiagnosis, and entitlement to separate and confidential discussions regarding our own care.
    2. 2. The right to affordable health insurance, as well as early detection tests unhindered by insurance or socioeconomic status.
    3. 3. The right to be offered fertility preservation as well as current information and research regarding ongoing and potentially lifelong effects of cancer treatment that would affect our fertility.
    4. 4. The right to be informed about available clinical trials and given reasonable access to them.
    5. 5. The right to untethered access to adolescent and young adult cancer specialists and, when requested, a second opinion regardless of insurance or geographic location.
    6. 6. The right to access a social worker or caseworker who is well-versed in adolescent and young adult cancer specifics.
    7. 7. The right to “generationally applicable” psychosocial support.
    8. 8. The right to have our insurance and position as a student or employee protected by law while dealing with our cancer in order to minimize discrimination.
    9. 9. The right to clear explanations regarding the long-term side effects of our disease and its treatment, and to be offered all available and applicable physical reconstruction and rehabilitation options.
    10. 10. The right to have all of our treatment options explained to us in full detail, to have our questions answered, and to receive clarification when requested so that we can be an active part of our own care.


    Preserve our potential.

    (From www.seventyk.org)

    25 months ago

  • Jen

    And that wasn't all of it, there were more drugs in a bag in the closet.

    31 months ago

  • Jen

    The photo is called "pill basket with chickens" and is full of all the garbage I had to take to be able to stay out of the bathroom for 5 minutes. :)

    31 months ago